Sharing Sensitive and Identifiable Human Data

Australian Research Data Commons

The ARDC Leadership Series is a new event series providing decision makers with an opportunity to work through big data challenges.

In-person or Online

This event has closed. Have questions? Email contact@ardc.edu.au

Sharing sensitive data between industry and research sectors can be challenging. Trust, risk management, competitive advantage and intellectual property rights are all significant hurdles to navigate when sharing sensitive data. Sensitive data can’t be shared openly for legal and/or ethical reasons and is often subject to specific conditions when reused due to the significant risk it poses to the research subjects (humans, endangered species, etc).The ability to share sensitive data securely opens up enormous opportunities for research and industry. Industry can use data to drive innovation and translation at scale, while the research sector can gain significant new insights to understand human health and wellbeing.Providing solutions for sharing sensitive data will reduce delays in time-limited projects, increase the return on investment of research, create positive impacts on project outputs, and benefit the Australian public as a whole.If you are responsible for strategic direction, decision-making, and resource allocation within your research organisation, this series is designed for you. Join us in a scenario-driven panel session where key influencers and decision makers will respond to these challenges by highlighting benefits, identifying blockers and enablers, and testing the appetite for a coordinated approach among Australian research organisations, using a specific exemplar case study.

The conversation will be led by the following leading thinkers: Facilitator<ul><li><a href="https://about.uq.edu.au/pvc-ri" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Prof Joe Shapter</a>, Pro-Vice-Chancellor, Research Infrastructure, The University of Queensland</li></ul>Panellists<ul><li><a href="https://researchers.uq.edu.au/researcher/1918" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Prof Peter Soyer</a>, MRFF-NG Practitioner Fellow, The University of Queensland Diamantina Institute Faculty of Medicine</li><li><a href="https://www.apsc.gov.au/initiatives-and-programs/aps-professional-streams/aps-data-professional-stream/aps-data-professional-stream-news/getting-know-our-data-leaders-phillip-gould" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Dr Phillip Gould</a>, First Assistant Secretary, Health Economics and Research Division at Australian Department of Health</li><li>
<a href="https://www.lifeblood.com.au/about/our-people/lifeblood-board-and-executive/marion-hemphill-general-counsel" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Ms Marion Hemphill,</a> General Counsel, Australian Red Cross Lifeblood</li><li><a href="https://www.phrn.org.au/about-us/governance/program-office/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Dr Merran Smith</a>, Chief Executive, The Population Health Research Network (PHRN)</li><li><a href="https://nceph.anu.edu.au/people/academics/professor-sotiris-vardoulakis#acton-tabs-link--tabs-person_tabs-middle-1" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Prof Sotiris Vardoulakis</a>, Centre for Public Health Data and Policy, The Australian National University (ANU)</li></ul>We are looking forward to having an interactive and thought-provoking session with you!

Have questions? Email comms@ardc.edu.au<a href="https://ardc.edu.au/subscribe/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Subscribe</a> to the ARDC Connect newsletter to keep up-to-date on latest digital research news and events.Please note that this event may be recorded and published by the ARDC. This may include your contributions during the session. ARDC respects the privacy of individuals. Information collected is in accordance with the ARDC <a href="https://ardc.edu.au/privacy-policy/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Privacy Policy</a>.

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