NHMRC and CHF Consumer Statement Workshop

National Health & Medical Research Council (NHMRC)

We are launching the review of the Statement on Consumer and Community Involvement in Health and Medical Research.

The National and Health and Medical Research Council (NHMRC) and the Consumers Health Forum of Australia (CHF) are convening a stakeholder consultation workshop to begin the review process of the Statement on Consumer and Community Involvement in Health and Medical Research, (the Statement). NHMRC and CHF understand the importance of engaging with consumers and the community on our agencies’ respective roles and activities, whilst also providing leadership and guidance to the health and medical research sector on the meaningful engagement of consumers throughout all stages of research and health care.The Workshop will provide an early opportunity to contribute to forming the principles for consumer involvement in health and medical research that will underpin the updated Statement. The Workshop will be chaired by Ainslie Cahill AM, chair of NHMRC &#x27;s Consumer and Community Advisory Group and include presentations by a number of speakers and an interactive discussion. The speakers will be:•	Debra Langridge - Head, Consumer and Community Involvement Program, WAHTNDeb is passionate about ensuring research can impact policy, practice and wellbeing of communities and enjoys bringing people together to make a difference. Her role leading the CCIProgram is to connect researchers with people with lived experience to support and encourage best practice research. Deb has always worked to capture the voices of all parts of community including access and inclusion, Aboriginal and Torres Strait Islander people, culturally and linguistically diverse communities, children and young people, mental health, health and community services.•	Dr Janelle Bowden - Founder, AccessCRJanelle has 20+ years of experience working in and around clinical trial operations in Australia and overseas, for sponsors, sites, and as a consultant. Janelle has a passion for creating more inclusive, accessible trials, and supporting greater consumer participation and involvement in research. Janelle is founder of AccessCR, a social enterprise that provides clinical trial and consumer engagement services to the research sector (sites, sponsors, other organisations) so as to deliver on its mission to support, build capacity in, connect and advocate for the needs of the community and consumer research workforce (CCReW – people looking for, taking part in and involved in medical research and clinical trials).•	Prof Susan Ramus - School of Clinical Medicine, UNSW Professor Susan Ramus is an international ovarian cancer researcher, in the School of Clinical Medicine, UNSW Sydney. Her interests include genetics to improve risk prediction for ovarian cancer and tumour profiling to improve ovarian cancer prognosis. She established and co-leads the international Ovarian Tumour Tissue Analysis (OTTA) consortium and she is a member of the steering committee of the Ovarian Cancer Association Consortium (OCAC).•	Dr Jack Nunn - Director, Science for All Dr Jack Nunn is the founder and Director of the charity ‘Science for All’, working to involve people in doing research by building partnerships between the public and researchers. He is also the Public Involvement Strategic Lead for La Trobe University, a member of the Australian Government committee MSAC-ESC, Co-Chair of the UNESCO Citizen Science &amp; Open Science Community of Practice and a member of the Cochrane Council. Recent projects include leading the co-design of Standardised Data on Initiatives (STARDIT).•	Anne McKenzie AM - Community Engagement Consultant and Advisor, Telethon Kids Institute Anne McKenzie AM has held professional and voluntary roles as a consumer advocate for almost three decades. Since 2004 she has worked in research organisations in Western Australia to increase community involvement in research. In 2015 Anne was appointed to the Order of Australia for her advocacy work in health services and research, and she received the NHMRC’s 2021 Biennial Award for Consumer Engagement.

NHMRC and CHF Consumer Statement Workshop

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NHMRC and CHF Consumer Statement Workshop

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