DöBra: Participatory action research to improve end of life care

Event Information

Share this event

Date and Time

Location

Location

Health Transformation Lab

Level 2

155 Pelham St

Carlton, VIC 3053

Australia

View Map

Event description
Carol Tishelman and Max Kleijberg, from Karolinska Institutet Division of Innovative Care, will discuss a program of end of life research

About this Event

A partnership with the Health Transformation Lab and School of Art Creative Care:

Professor Carol Tishelman and PhD student Max Kleijberg, from Karolinska Institutet Division of Innovative Care, will discuss a program of end-of-life research within the Swedish context. Carol leads the DöBra (a pun meaning both ‘dying well’ and ‘awesome’ in Swedish) program, which is a cohesive national transdisciplinary research program. The DöBra research program aims to investigate how culture, the environment and conversation can promote constructive change and support better quality of life and death among the general population, in specific subgroups and in interventions directed to staff caring for dying individuals, their friends and families. DöBra uses ideas from new public health and the Ottawa Charter as umbrella theoretical frameworks and participatory action research as an overarching methodological approach, working with a range of projects in different settings to combine stringent research with sustainable change processes. In DöBra, we work in partnership with stakeholders and researchers with a wide variety of backgrounds in health care science, social sciences, humanities and creative practices. Carol will present the background to the program, its individual components, and discuss some of the challenges and possibilities encountered that may be relevant for the

Australian context. Max will discuss his application of art and action research in the DöBra research program.

Professor Carol Tishelman is Professor of Innovative Care, at Karolinska Institutet in Stockholm, Sweden. This position is a joint position with employment at the Centre for Rural Medicine in the remote north part of the country, as well as with the Stockholm health care services.

Carol grew up in the Bronx, New York, has a background in women's studies, and received a Bachelor of Science in Nursing from the University of Pennsylvania, USA. She has lived in Sweden most of her adult life and has worked at Karolinska Institutet, where she also received her PhD, since the mid-1980s. Carol instituted a research group in Innovative Care Research through an Endowed chair as Professor of Innovative Care funded by Investor AB (October 2014-Sept 2019) , and now co-leads the group, which has now grown to a Division. Carol has conducted research in palliative care for several decades, and leads the national competitively-funded DöBra research program in Sweden, aimed at integrating palliative care, public health and health promotion. She has been on the steering board of major international organizations in her field, i.e. International Society of Nurses in Cancer Care, the European Society for Psychosocial Oncology and the European Association for Palliative Care. She is recently become the 2nd registered nurse elected to Academia Europeaea ( equivalent of a European academy of arts and sciences).Carol has received competitive funding from a range of national agencies and has led major national and international projects in a variety of areas related to nursing, (e.g the Swedish component of the International Cancer Benchmarking Partnership on awareness, attitudes and beliefs about cancer in the population, and Swedish PI for the EU 7th framework financed RN4CAST project, on nurse workforce issues).

Max Kleijberg is a PhD student in Sweden at Karolinska Institutet, at the Division of Innovative Care Research in the DöBra research program. Max is originally from the Netherlands and has a design background with experience in working with innovation and social entrepreneurship projects in transdisciplinary groups. His PhD research is a participatory action research project aiming to support community engagement in end-of-life issues. Max collaborates with various community-organizations to develop Studio DöBra: places where children and elderly people can meet and work together on the theme of death and loss through art projects.

Date and Time

Location

Health Transformation Lab

Level 2

155 Pelham St

Carlton, VIC 3053

Australia

View Map

Save This Event

Event Saved