Co-ordinated and whole of life care for people living with a rare disease
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Co-ordinated and whole of life care for people living with a rare disease

Join us for a day of learning and collaboration on co-ordinated and whole of life care for those living with a rare disease!

By Australian Institute of Health Innovation - Macquarie University

Date and time

Starts on Mon, 6 May 2024 6:00 PM AWST

Location

Harry Perkins Institute of Medical Research (North)

6 Verdun Street Nedlands, WA 6009 Australia

About this event

  • 3 hours 30 minutes

In partnership with the Rare Care Centre in Perth, you will hear from, Professor Yvonne Zurynski and Christina Rojas as part of the RArEST Project (Rare Disease Awareness, Education, Support and Training) and supported by the Australian Institute of Health Innovation, Macquarie University.

This simulation workshop will challenge you to think beyond your usual roles and ways of working to improve care integration for people living with a rare disease. Everyone is welcome whether you are a clinician, a patient or caregiver, a policymaker, manager, or researcher! Supper will be provided after the workshop where you will also have an opportunity to network with others in the space.