ARDC HeSANDA Expansion Project - Health Cohort Researcher Workshop 1

NOTE:

• This is the registration page for Workshop 1
• To register for the other workshops, follow the links below.

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ARDC initiated the Health Studies Australian National Data Asset (HeSANDA) program in 2020 to build national infrastructure to support the sharing of health research data for secondary research purposes, bring value to the research community, increase the efficiency of research, and provide benefits for the health of Australia’s population.

The first stage of HeSANDA (2020-2023) focused on the sharing and reuse of data from publicly-funded clinical trials research conducted in the academic sector. ARDC invested $3.5M into the clinical trials research community which has co-designed a nationally federated research data infrastructure. In collaboration with 72 organisations, ARDC has developed a national data catalogue and data request platform so that clinical trialists can make their data discoverable and requestable in accordance with a national framework they designed together.

ARDC is now expanding its investment into health data infrastructure (the ‘People Research Data Commons’) to support a broader range of health research areas and data types, and a broader infrastructure offering including secure data access, data integration, and advanced analytics.

The priority of the HeSANDA expansion project is to evaluate the feasibility of applying the HeSANDA infrastructure model for data discovery and requests in other health research areas.

For more information, see HERE

Who should attend?

ARDC now invites participation in a series of consultation workshops to anyone affiliated with Australian cohort research or other research communities.

IMPORTANT: A separate consultation is being held for people working with clinical registries. To register for that event, see HERE .

How will the public consults occur?

Commencing July 2023, we are requesting 90 minutes of your time on three occasions to attend interactive online workshops. Each month (July, August, September) the workshop will address differing topics with a structured agenda and key questions. Each workshop will be supported by providing background documentation, moderated breakout sessions with Q&A.

Repeat workshops each month may be organised subject to demand. Interested parties who are unable to attend the workshops may be allowed to contribute to the consultations by providing written submissions and feedback via email. All interested parties should register for this event regardless of whether they can attend the workshops.

Workshop topics

Workshop 1

Introduction to the HeSANDA program and research purpose : Provides attendees with an introduction to the HeSANDA Program and discusses “is benefit in sharing health research data for secondary purposes?”

Workshop 2

Follow up with key community leads: Focuses on the types of data and research outputs that are available to be shared, the barriers and enablers that impact data sharing.

Workshop 3

HeSANDA infrastructure model: A discussion on existing data sharing practices, identifying if there are gaps and feasibility of using the existing infrastructure.

When

Workshops will be held on the dates below. Please register for all three workshops.

• Workshop 1: 26th July 2023, 2.00-3.30 AEST Register Above
• Workshop 2: 30th August 2023, 2.00-3.30 AEST click Register for Workshop 2_Cohort
• Workshop 3: 27th September 2023, 2.00-3.30 AEST click Register for workshop 3_Cohort

Speakers

• Dr Kristan Kang, Program Manager, HeSANDA, ARDC
• Ms Tamara Hooper, Project Coordinator, HeSANDA, ARDC

Further ARDC resources

• Health Studies Australian National Data Asset (HeSANDA)
• People Research Data Commons
• ARDC website

Will the session be recorded?

Yes, the session will be recorded, provided to all registrants and published online.

Have questions?

Email hesanda.consultations@ardc.edu.au

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