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ACHLR 7th Annual Public Oration - Professor Jane Kaye

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Room Three Sixty

Level 10, Y Block, QUT Gardens Point Campus

2 George Street

Brisbane, QLD 4000

Australia

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ACHLR 7th Annual Public Oration - Professor Jane Kaye

Topic: Digital Health, Citizens and Commercialisation

Please join members of the Australian Centre for Health Law Research and QUT Law Lab: Technology, Regulation and Justice for canapes and beverages in Room Three Sixty followed by the annual public oration from Professor Jane Kaye.

Date: Thursday, 14 November 2019
When: 5:30pm (Refreshments on arrival)
6:00pm to 7:30pm (Presentation)
Venue: Room Three Sixty
Level 10, Y Block, QUT Gardens Point Campus
2 George Street, Brisbane

Register: By Thursday, 7 November 2019

Note: CPD points may be available through your professional association or college.

Abstract: The UK National Health Service is accelerating digital innovation and seeking ways to reap benefits for healthcare, whether that be selling access to health data for health purposes or improving clinical care through the use of apps and algorithms. Digital health is increasingly characterised by public/private partnerships where health data is provided by healthcare systems in return for expertise in machine- learning, artificial intelligence and big data analysis, provided by commercial entities.

It is in this space that the different regulatory regimes of digital health, (based on the interests of the patient and public values) and digital capitalism (based on market concerns) collide. We are at a critical juncture where the public/private partnerships agreements of today will set precedents that determine who controls the use and access to health data, which will have far-reaching implications for future generations. What is missing from this debate are considerations about the collective interest in data and a focus on systemic systems of regulation and oversight, rather than governance that is designed for specific projects.

The purpose of this paper is to critically explore some of the new models of governance that are being proposed for data infrastructure: such as the idea of the Medical Information Commons and individual data dividends. How do we maximise the monetary and technological benefits for individuals and the wider society, without unduly profiting private companies?

Presenter: Prof Jane Kaye, is the Director of the Centre for Law, Health and Emerging Technologies (HeLEX) at the University of Oxford and has a part-time Professorship at the University of Melbourne, Australia, where she also has a research team called HeLEX@Melbourne.

Professor Kaye obtained her degrees from the Australian National University (BA); University of Melbourne (LLB); and University of Oxford (DPhil), Her research teams consist of lawyers and sociologists who use mixed-method empirical approaches to explore the relationships between law, governance and best practice in the field of emerging technologies in health. The current technologies that HeLEX are focussing on are the impact of digital technologies, regenerative medicines, genome editing and 3D printing.

The main focus of Professor Kaye’s research is on governance with an emphasis on personalised medicine, biobanks, privacy, data-sharing frameworks, international governance and translational research. She is on a number of international expert committees, such as the UN Taskforce on Health Data Privacy as well as a number of scientific advisory boards. She is on the editorial boards of Law, Innovation and Technology, the Journal of Law, Information and Science, New Genetics & Society and Life Sciences, Society and Policy. Her team are leading on the Dynamic Consent project and she is one of the leaders in the ELSI 2.0 Global Initiative.

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Room Three Sixty

Level 10, Y Block, QUT Gardens Point Campus

2 George Street

Brisbane, QLD 4000

Australia

View Map

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