A Charity Fundraiser Dinner for MPN Research

The Myeloproliferative Neoplasms Alliance Australia (MPN AA) was formed in 2015 by a small group of motivated patients. The patient-led advocacy group collaborates with the Leukaemia Foundation of Australia with the common goal of achieving better outcomes for Australian MPN patients.Myeloproliferative neoplasms (MPNs) are a closely related group of progressive blood cancers in which the bone marrow typically overproduces one of the mature blood elements. Other shared features include tendencies toward blood clotting/bleeding, organ enlargement, bone marrow scarring (fibrosis) and a possibility of transformation. MPNs can strike anyone at any age.

MPN Alliance Australia In cooperation with Leukaemia Foundation

<IMG ALT="Charity Dinner Invite" SRC="https://cdn.evbuc.com/eventlogos/250224871/mpninvitea4-1.jpg">
Come and join us for a 3-course dinner, which includes beverages such as wine, beer and softdrinks.
The night will be filled with loads of fun and entertainment
<UL>
<LI>Live music by the band 'Soul’d Out'</LI>
<LI>Dancing</LI>
<LI>Auctions and silent auctions</LI>
<LI>Excellent food at a great venue</LI>
</UL>
All funds raised from this dinner will support MPN research. 
Dress code for the event is neat attire.
 
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MPN Alliance Australia Fundraising Goals
Myeloproliferative Neoplasms (MPNs) are a group of rare blood cancers, in which various blood cells proliferate uncontrollably, as a result of a number of different gene mutations which are acquired during the patient’s life. They can affect anyone, and they need constant monitoring and management by medical specialists. They can significantly impact on quality of life and cause a host of symptoms, most dangerously thrombosis and heart attacks. Patients are treated with “watch and wait”, or ongoing drug therapy including oral chemotherapy or injected interferon to keep their blood counts under control. Whilst many patients may lead long lives if properly managed, other patients have more severe forms of the disease and have shortened life spans. Any form of MPN can progress to a more severe form, and also to a dangerous form of acute leukaemia. The only cure for MPNs is a stem cell transplant (SCT) which is risky and expensive, and not an option for most patients. Due to their rarity, MPNs have not historically attracted research funding, and it is only in recent years that some of the secrets of MPNs have been discovered. 
However, there are so many unanswered questions about the causes and impact of MPNs, and in order to attract research funding, we need to be able to quantify and describe the demographics of the MPN community in Australia. So the purpose of this fundraiser is to obtain funds to study the following questions:
What is the incidence and prevalence of MPNs in Australia?  
We would like to investigate whether all MPN patients are being recorded in the official statistics, and implement changes to processes and/or regulations to ensure the records are accurate. The official statistics influence decisions on funding clinical and support services so it is critical that they reflect the true situation.  
What causes the genetic mutations which give rise to MPNs? 
Do environmental and lifestyle factors cause MPNs?  We would like to compare people with and without MPNs to see if factors such as smoking, diabetes and other medical conditions and chemicals at work cause MPNs.   
What is the impact of an MPN on a newly diagnosed patient and how does this impact change over time?  
We would like to create a profile of the experiences and wellbeing of MPN survivors, in order to underpin decisions on support for this population. 
Can physical activity improve well-being of MPN patients?  
Physical activity can improve survival and well-being in some cancers, but we do not know whether that applies to patients with MPNs. We would like to investigate what kinds of physical activity are beneficial, and how it might improve the lives of MPN patients.
 
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 FAQs
What are my transport/parking options for getting to and from the event?
There is ample parking available in the carpark right next to the venue. Parking is free of charge.
What can I bring into the event?
Please bring lots of small change to win prizes throughout the night. Credit cards are also accepted for the auction and silent auctions.
What is the dress code?
Neat attire.
How can I contact the organiser with any questions?
If you have any questions, please email Jolanda Visser:
mpnaa.jolanda@gmail.com
What's the refund policy?
Please be advised that we have a no refund policy, but will be willing to assess requests on an individual basis.

The Grand Ballroom

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