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Fabry Australia

Fabry Australia is a not-for-profit community organisation formed by patients, relatives and friends of those suffering from a rare genetic disorder known as Fabry Disease.
 
Fabry disease can be difficult to diagnose because it is rare and has many different symptoms. It is often mistaken for other conditions. The longer someone has Fabry disease, the more damage is likely to occur in the kidneys, heart and other organs. The earlier Fabry disease is diagnosed the better the chance of preventing other health problems.

Fabry Australia also acts on behalf of the Australian Fabry Community in discussions with Treatment Centres and Doctors, Pharmaceutical Companies and Australian Federal Government Departments in relation to issues surrounding treatments of Fabry Disease in Australia.

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