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Cystic Fibrosis Queensland

Cystic fibrosis is the most common life limiting genetic disease in Australia, primarily affecting the lungs and digestive system. After diagnosis, those with the condition will experience a lifetime of grueling physical therapy, require access to specialist medical treatments and require multiple hospital visits just to survive. Despite regular treatment, most will not live past their 37th birthday.

 Cystic Fibrosis typically affecting the lungs, pancreas, sweat glands and small intestine and individuals have trouble breathing and getting nutrients from food. Management of the illness requires daily physiotherapy, medication and regular often lengthy hospital. It affects 70 000 people worldwide with over a million Australians carrying the gene.

 Who is Cystic Fibrosis Queensland?

Cystic Fibrosis Queensland is a charity dedicated to supporting those with the condition to manage both its physical and emotional impacts. We provide a range of essential services including:

  • Counselling and in-hospital support, including access to social workers, physical activity subsidies and emergency funding
  • Practical treatment services including lifesaving equipment and physical therapy
  • ‘Rose Cottage’, our overnight accommodation facility for families experiencing long stays in Brisbane hospitals
  • Advocacy and community education
  • Research and clinical improvement as part of the Cystic Fibrosis Federation Australia

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