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Royal Australasian College of Physicians

145 Macquarie St

Sydney, NSW 2000


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The Children's Tumour Foundation of Australia warmly invites you to

The Inaugural Australian Neurofibromatosis Clinical Symposium 2017

Date: Friday 20 October 2017

Sydney | Royal Australasian College of Physicians

Cost: $50. If you are a trainee or student please contact Georgia Willesee at georgia.willesee@ctf.org.au for a discount code.

We are proud to announce the Inaugural Australian Neurofibromatosis Clinical Symposium 2017 to be held in Sydney. The symposium will feature a keynote address from Professor Rosalie Ferner, Professor of Neurology at Guy's and St Thomas' Hospital in London. The address will be followed by presentations outlining the latest clinical thinking on research findings and treatment approaches for patients diagnosed with Neurofibromatosis (NF). Our aim is to bring together clinicians and researchers to improve collaboration in this diverse clinical community.

This event is aimed at Doctors (consultants and trainees), Clinical Specialists and Scientists in the field of NF1, NF2, and Schwannomatosis.

Keynote Speaker

Professor Rosalie Ferner studied Medicine at the Medical School of Newcastle on Tyne. She was accredited in neurology in 1996 and has been a consultant neurologist at Guy’s and St Thomas’ Hospitals in London since 1999. She was appointed Professor of Neurology in 2010 and is chairman of the medical advisory board of the national Neuro Foundation. Professor Rosalie Ferner has been national lead for the nationally commissioned NF1 service since 2009 and lead for the London NF2 service since 2010. The aim of these national neurofibromatosis services is to give expert, multi-disciplinary, holistic care for people with complex, multi-system disease.

Professor Ferner has many research interests including defining the clinical phenotype in the neurofibromatosis, the natural history of optic pathway glioma and the development of robust clinical outcome measures for monitoring novel therapies

Draft Program

9.00 - 9.30 Ros Ferner advances in NF1

9.30 - 10.30 Screening and Treatment updates; MEK inhibitors, bevacuzimab, breast screening

10.30 - 11.00 Break

11.00 - 11.30 Clinical trials and mouse studies

11.30 - 12.00 Cognition in NF1

12.00 - 12.45 Clinical Cases Session 1: Diagnostic Dilemmas / “Cases that taught me something”

12.45 - 13.30 Lunch

13.30 - 14.30 Surgical Management and Radiology

14.30 - 15.30 Clinical Cases Session 2: Interesting Cases - Imaging and Management Dilemmas

15.30 - 16.00 Break

16.00 - 17.00 NF Clinics Session - Ros Ferner: How to build a clinic, Clinic updates

Call for Cases/Abstracts

Case/Abstract Submissions Now Open! Closes Thursday 31 August. Abstracts must be forwarded to Vivienne.schiavone@health.nsw.gov.au.

Abstract Guidelines:

  • Word document format, 11 or 12 point standard font

  • Maximum length 250 words

  • Abstracts not to include graphs, tables, images or references

  • Format to include:

    • For research papers: Introduction, Methods, Results, Discussion, Conclusion

    • For review papers: Introduction, Discussion, Conclusion and Recommendations

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Royal Australasian College of Physicians

145 Macquarie St

Sydney, NSW 2000


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