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The Children’s Hospital at Westmead

214 Hawkesbury Road

Westmead, NSW 2145

Australia

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This seminar is for the NF community to come together and learn about neurofibromatosis in adults. Our guest speakers will discuss a range of topics including how to manage the transition from adolescence, treatments for people with NF2, skin and breast cancer issues in NF1.

The seminar will conclude with a short Q&A session with questions sent in prior to the event.

This seminar will be live streamed with captioning to enable those unable to attend to log in and take part. It will also be recorded and made available on request.

After the seminar had concluded, there will be light refreshments avalaible for attendees in Sydney, providing a great opportunity to meet new people as well as chat to our speakers.


SPEAKERS - PANEL GUESTS

1. NF and Adolescence – Professor Rosalie Ferner

2. Impact of a skin clinic for Patients with NF1 – Claire Wong

3. Treatment of NF2 using Avastin – Katrina Morris

4. Cancer risk in adulthood, Breast cancer screening in NF1 - Ashley Crook


EVENT SCHEDULE (DRAFT)

10:30am: Start of Seminar with Short Introduction - CTF Representative

10:40am: NF1 and Adolescence - Professor Rosalie Ferner

11:00am: Impact of a skin clinic for Patients with NF1 - Claire Wong

11:20am: Treatment of NF2 using Avastin - Katrina Morris

11:40am: Cancer risk in adulthood, Breast cancer screening in NF1 - Ashley Crook

12:00pm: 30min Q&A Panel - All Speakers

12:30pm: Wrap up of Panel and Seminar followed by morning tea for attendees

1:00pm: End of Event


BIOS

1. PROFESSOR ROSALIE FERNER
Professor Rosalie Ferner graduated in modern languages from University College London and studied Medicine at the Medical School of Newcastle on Tyne. She undertook training in general medicine in Newcastle and gained experience in oncology at the Royal Marsden Hospital, London.

She was accredited in neurology in 1996 and has been a consultant neurologist at Guy’s and St Thomas’ since 1999.

She was appointed Professor of neurology in 2010 and is chairman of the medical advisory board of the national Neuro Foundation. She has been national lead for the nationally commissioned NF1 service since 2009 and lead for the London NF2 service since 2010. The aim of these national neurofibromatosis services is to give expert, multidisciplinary, holistic care for people with complex, multi-system disease.

ADDITIONAL BIOS TO COME

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Date and Time

Location

The Children’s Hospital at Westmead

214 Hawkesbury Road

Westmead, NSW 2145

Australia

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