Navigating uncertain times: Palliative Care symposium
Event Information
About this Event
Navigating uncertain times is an online event from the Lorimer Dods Education Centre at The Children's Hospital at Westmead.
Presentations and panels are live-streamed to allow audience participation. Our two international speakers will provide pre-recorded presentations followed by interactive Q&As.
Symposium program
Morning session
09:00-09:20: Challenges for Palliative Care Services with COVID-19. A/Prof Brian Le
09:20-09:40: A parent's perspective on COVID19. A/Prof Jenny Hynson and Danielle Burnet (parent)
09:40-09:50: Q&A panel discussion. A/Prof Lee, A/Prof J Hynson and Danielle Burnet
09:55-10:30: A Little Piece of Me project. Kirsty-Leah Goymour and parent
10:30-10:50: Break
10:50-11:00: PaPCANZ PCA project update. Sara Fleming
11:00-11:20: Development of PPC in the humanitarian sector. Dr Marianne Phillips
11:20-11:40: Paediatric Palliative Care Pathway. Dr Lisa Cuddeford and Renee Deleuil
11:40-11:50: Q&A panel discussion. Dr Philips, Dr Cuddeford and Renee Deleuil
12:00-13:00: Lunch
Grand Rounds session
13:00-14:00: Sleep softly? Schubert, ethics, and the value of dying well. Dominic Wilkinson (pre-recorded international speaker)
Afternoon session
14:05-14:45: When everything has changed: bereavement in uncertain times. Jenny Hunt (pre-recorded international speaker)
14:45-15:00: Q&A panel discussion. Prof D Wilkinson and Jenny Hunt
15:00-15:10: Break
15:20-15:30: Paediatric Palliative Care and Paediatric Cardiology. Maggie Chow
15:30-15:50: An uncertain landscape: Ventricular assist devices and the role of paediatric palliative care. Sonya Camilleri
15:50-16:00: Q&A panel discussion. Dr Maggie Chow and Sonya Camilleri
International speaker list
Professor Dominic Wilkinson
Dominic is Director of Medical Ethics and Professor of Medical Ethics at the Oxford Uehiro Centre for Practical Ethics, University of Oxford. He is a consultant in newborn intensive care at the John Radcliffe Hospital, Oxford, and a senior research fellow at Jesus College Oxford.
Dominic has published more than 140 academic articles relating to ethical issues in intensive care for adults, children and newborn infants. His co-authored books include:
- Medical Ethics and Law, third edition. Elsevier 2019
- Ethics, Conflict and Medical treatment for children, from disagreement to dissensus Elsevier, 2018. (BMA President’s Award in 2018 British Medical Association Book Awards)
- Death or Disability? The 'Carmentis Machine' and decision-making for critically ill children. Oxford University Press 2013. (" ... the best book of the decade in bioethics... this is a book that must be read by everybody who is seriously interested in the bioethical issues that arise in neonatal intensive care or, more generally, in decision making for children with chronic, debilitating or life-threatening conditions." (John Lantos, Notre Dame Philosophical Reviews).
Dominic was Editor and Associate Editor of the Journal of Medical Ethics from 2011-2018.
Jenny Hunt
Jenny Hunt qualified as a social worker and worked as a generic social worker before specialising in palliative care and bereavement at Island Hospice and Bereavement Service, Harare, Zimbabwe.
As the Bereavement Service Coordinator at Island Hospice, Jenny established a wide range of programs for the bereaved including bereaved children’s groups and a community-based approach to raise awareness about bereavement.
Jenny obtained an MA Death and Society from Reading University, UK, in 2003 and has since undertaken numerous palliative care consultancies in Africa. She obtained a Diploma in Palliative Care through Oxford Brookes University/Nairobi Hospice in 2015.
Jenny runs a private counselling practice in Harare and provides supervision to several social workers. She has published work on palliative care, bereavement, and minority populations primarily relating to Africa and resource-poor countries.
Jenny's growing interest is in the provision of psychotherapeutic and bereavement support in humanitarian crises, with experience in training counsellors in India after the 2004 tsunami, counselling survivors of cyclone Idai in Zimbabwe, and training health professionals working with Rohingya refugees in Bangladesh.
Australian speakers
Sonya Camilleri
Clinical Nurse Consultant, Victorian Paediatric Palliative Care Program.
Dr Maggie Chow
Paediatric Palliative Care Fellow
Dr Lisa Cuddeford
Clinical Lead, WA Paediatric Palliative Care Service, Perth Children’s Hospital
Renee Deleuil
Clinical Nurse Consultant, WA Paediatric Palliative Care Service, Perth Children’s Hospital
Sara Fleming
NP and Clinical Service Director, Paediatric Palliative Care, WCHN and Chair PaPCANZ
Kirsty-Leah Goymour
Manager Child Life and Music Therapy Palliative Care and Chronic Pain, SCHN
A/Prof Jenny Hynson
Clinical Associate Professor, Head, Victorian Paediatric Palliative Care Program The Royal Children's Hospital Melbourne
A/Prof Brian Lee
Director of Palliative Care, Victorian Comprehensive Cancer Centre (Peter MacCallum Cancer Centre and The Royal Melbourne Hospital)
A/Prof Marianne Philipps
Senior Consultant, Oncology/Haematology/Bone Marrow Transplantation and Palliative Care Perth Children’s Hospital