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MEDICINAL CANNABIS FOR CHILDHOOD EPILEPSY: TOWNSVILLE PARENTS FORUM

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CityLibraries Aitkenvale

4 Petunia Street

Townsville, QLD 4814

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The Lambert Initiative for Cannabinoid Therapeutics (The University of Sydney) and Epilepsy Action Australia invite parents and carers of children with epilepsy interested in medicinal cannabis to a morning tea forum.

Carol Ireland (CEO, Epilepsy Action Australia), Anastasia Suraev (Research Associate, The Lambert Initiative) and Ruth Blackburn (Research Officer, The Lambert Initiative) will provide an overview of medicinal cannabis for childhood epilepsy including current research and legal pathways of how to access medicinal cannabis in Queensland. They will also invite questions and discussion on the topic from parents and carers.

Anastasia and Ruth will also be taking expressions of interest for the PELICAN study from parents on the day. The PELICAN study is open to parents of children with epilepsy who are interested in being interviewed on the topic of medicinal cannabis.

All parents and families are welcome to participate, whether or not they are using medicinal cannabis to treat their child’s epilepsy. Parents can also discover how they can receive feedback on the cannabinoid content of a product they are using, or have used in the past, through participating in the study.

More information on the PELICAN study:

https://sydney.edu.au/lambert/our-research/epilepsy/the-pelican-study.html

For more information on this event please call Ruth on 0439 804 551.

Places are limited. Please RSVP by Tuesday 7th November.


FORUM SPEAKERS


Carol Ireland

Carol Ireland is CEO and Managing Director of Epilepsy Action Australia. She has an extensive background spanning 35 years in the not-for-profit human services sector and holding a variety of executive positions in operations, service delivery, marketing and fundraising. Carol currently serves on the Australian Advisory Council for the Use of Medicinal Cannabis, the Advisory Board of the Lambert Initiative for Cannabinoid Therapeutics at the University of Sydney and Steering Committee for the NSW government’s Paediatric Epilepsy Trials (Medicinal Cannabis Research), and is a founding Director of the newly constituted Medicinal Cannabis Council. In her role at Epilepsy Action she has had significant contact with many individuals and families who are faced with managing very challenging forms of medication resistant epilepsy, with few or no options left in the conventional treatment bucket. Carol has heard and seen the changes in people’s lives, including reduction in the severity and frequency of seizures, resulting from use of medicinal cannabis. She is a strong and active advocate for people living with epilepsy.

Anastasia Suraev MSc

Anastasia Suraev graduated with a Bachelor of Advanced Science (Honours in Psychology) at the University of Sydney. Following this, she completed a Masters in Psychology (Clinical Neuropsychology) at the University of Melbourne in 2015. In early 2016, she began working as a Clinical Research Officer at the Lambert Initiative. Her main roles involve developing next-phase clinical research proposals and in coordinating the PELICAN research study. Anastasia is also involved in community outreach where she provides assistance to people in the community on navigating the patient access schemes for medicinal cannabis.


Ruth Blackburn MSc

Ruth Blackburn completed her Master of Psychology (Educational and Developmental) at Queensland University of Technology, and is currently a Research Officer for the PELICAN Study in Queensland. Previously undertaking research to measure the cortisol response of children in kindergarten, her roles include working with children and adults with learning disabilities for The Benevolent Society and supporting young people in out-of-home (foster) care.

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CityLibraries Aitkenvale

4 Petunia Street

Townsville, QLD 4814

Australia

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