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Fabry Patient Meeting 2017

Fabry Australia

Saturday, 9 September 2017 from 9:00 am to 6:00 pm (AEST)

Fabry Patient Meeting 2017

Ticket Information

Ticket Type Sales End Price Fee Quantity
General Admission - Fabry Australia Member 18/08/2017 Free $0.00
General Admission - Non Fabry Australia Members 18/08/2017 $150.00 $8.51

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Event Details

"Exploring the Fabry Future"

Fabry Australia is pleased to invite the Fabry patient community to this year’s Fabry Australia National Fabry Patient Meeting – ‘Exploring the Fabry Future’ being held on 9th September 2017 at the Novotel Hotel in St Kilda Victoria.

This year’s conference is shaping up to be a fabulous program. We are fortunate to have excellent speakers presenting on a range of topics including; the latest clinical Fabry Disease research, findings from the Australian Experience of living with Fabry Disease, Management of Fabry Disease in the clinical setting, Fabry Disease and Genetics / inheritance, Fabry patient support programs, Carers Support Programs / NDIS, Fabry Disease Testing Programs, the isolation of living with Fabry Disease in New Zealand and some Fabry Disease patient testimonies. Fabry Australia has invited a facilitator to help with a workshop on Fundraising – putting the ‘Fun’ back into fundraising.

All attendees will receive conference materials, program, access to speakers, opportunity to contribute to panel Q & A sessions, morning and afternoon tea, hot & cold lunch and dinner at the Hotel restaurant. To ensure you don’t miss out, please register your attendance by 18th August 2017.

The full program details can be viewed via visiting the Fabry Australia website.

We look forward to catching up with the Australian Fabry Community very soon!

Have questions about Fabry Patient Meeting 2017? Contact Fabry Australia

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When & Where


Novotel Melbourne
16 The Esplande
St Kilda, VIC 3182
Australia

Saturday, 9 September 2017 from 9:00 am to 6:00 pm (AEST)


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Organiser

Fabry Australia

Fabry Australia is a not-for-profit community organisation formed by patients, relatives and friends of those suffering from a rare genetic disorder known as Fabry Disease.
 
Fabry disease can be difficult to diagnose because it is rare and has many different symptoms. It is often mistaken for other conditions. The longer someone has Fabry disease, the more damage is likely to occur in the kidneys, heart and other organs. The earlier Fabry disease is diagnosed the better the chance of preventing other health problems.

Fabry Australia also acts on behalf of the Australian Fabry Community in discussions with Treatment Centres and Doctors, Pharmaceutical Companies and Australian Federal Government Departments in relation to issues surrounding treatments of Fabry Disease in Australia.
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