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Fabry Australia National Fabry Patient Meeting

Fabry Australia

Saturday, 19 October 2019 from 9:00 am to 10:00 pm (AEDT)

Fabry Australia National Fabry Patient Meeting

Ticket Information

Ticket Type Sales End Price * Fee Quantity
Conference - Member
This ticket is for 1 (one) Fabry Australia Member.
Ended Free $0.00
Conference - Non Member
This ticket is for 1 (one) Attendee.
Ended $150.00 $9.34
Conference - Speaker   more info Ended Free $0.00
* Prices include GST

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Event Details

Fabry Australia is pleased to invite the Fabry patient community to this year’s Fabry Australia National Fabry Patient Meeting – ‘Fabry Australia – 25 years strong!’ being held on Saturday 19th October 2019 at the Rydges Cronulla Beachside Hotel.

Fabry Australia’s bi-annual Fabry Expert Meeting is looking to be a great event. We are fortunate to have excellent speakers presenting on a range of topics including; the latest clinical Fabry Disease research, Fabry Disease Clinical Trials, Paediatrics management, care and treatment, Fabry Disease and Genetics / inheritance, Fabry Disease Testing Programs, navitaging the NDIS, living with Fabry Disease in a rural area and some Fabry Disease patient testimonies as well as our Annual Report, Annual General Meeting and Fabry Australia’s 25th Anniversary sit down three course meal.

All attendees will receive conference materials, program, access to speakers, opportunity to contribute to panel Q&A sessions, morning and afternoon tea, hot & cold lunch and dinner to celebrate Fabry Australia's 25th Anniversary, to be held at the Hotel restaurant. To ensure you don’t miss out, please register your attendance by Thursday 19th September 2019.

Further details are on the Fabry Australia website. Applications for Travel Grants are also available by emailing secretary@fabry.com.au 

The cost to attend is free for all Fabry Australia Members. Sign up to become a member via the Fabry Australia Website.

Have questions about Fabry Australia National Fabry Patient Meeting? Contact Fabry Australia

When & Where


Rydges Cronulla Beachside
20-26 Kingsway
Cronulla, NSW 2230
Australia

Saturday, 19 October 2019 from 9:00 am to 10:00 pm (AEDT)


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Organiser

Fabry Australia

Fabry Australia is a not-for-profit community organisation formed by patients, relatives and friends of those suffering from a rare genetic disorder known as Fabry Disease.
 
Fabry disease can be difficult to diagnose because it is rare and has many different symptoms. It is often mistaken for other conditions. The longer someone has Fabry disease, the more damage is likely to occur in the kidneys, heart and other organs. The earlier Fabry disease is diagnosed the better the chance of preventing other health problems.

Fabry Australia also acts on behalf of the Australian Fabry Community in discussions with Treatment Centres and Doctors, Pharmaceutical Companies and Australian Federal Government Departments in relation to issues surrounding treatments of Fabry Disease in Australia.
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