Dancing at the Vatican: Australian Premiere

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On May 18, 2017, at Aula Paolo VI in Vatican City, Rome, Pope Francis became the first world leader to recognise the devastating plight of those living with and affected by HD. The whole project came under the banner of HDdennomore (Hidden No More), as explained by award winning journalist and active HD advocate, Charles Sabine.

Watch Charles Sabine explain how and why HDdennomore came to be.

The global gathering was inspired by the plight of families from South America most ravaged by HD. Families from Colombia, Venezuela and Argentina travelled to meet with Pope Francis and join an audience of thousands at the Vatican to drive awareness of HD and to lift the stigma around the disease.

In collaboration, Huntington's New South Wales ACT, Queensland, Tasmania, Western Australia, South Australia and Northern Territory, with the Huntington's Research Group of Victoria warmly invite you to be a part of this story.

Gather with your household, in the comfort of your own home and witness the online Australian Premiere of Charles Sabine's Dancing at the Vatican.

At $20 the ticket includes the viewing of the documentary for an entire household, with a special Q+A with Charles himself, alongside key leaders in the field of HD.

Places are limited so don't wait to register!

Proceeds will be donated to your local Australian HD State Association or HDYO, the International Youth Organisation.

For further information, contact:

Kelly Atkins at kelly.atkins@monash.edu

or your state advocacy group

Huntington's Queensland: admin@huntingtonsqld.org.au

Huntington's NSW & ACT: info@huntingtonsnsw.org.au

Huntington's Western Australia: admin@huntingtonswa.org.au

Huntington's SA & NT: www.huntingtonssant.org.au/contact-us

Huntington's Tasmania: huntingtontas@outlook.com.au



How do I access the event on the night?

An email with your personal link to access the screening will be sent to the email address that you used at the time of event registration and ticket purchasing. Use this link on the night and follow the prompts to join the screening. Don't send you link to anyone else. Each link may only be used once.

What do I need to be involved in this online screening?

To view the documentary and the Q+A session that follows you will need a computer that is connected to the internet. As the documentary will be live streamed, the quality of the stream will depend on the strength of your internet connection.

To take part in the Q+A you, type your question via the chat function hosted by the service streaming the documentary. More information about this will be sent to your registered email address closer to the date.

What if I can't attend the first screening in June?

We have scheduled two events, one in June and another in August. Both events will be attended by Charles Sabine and include key leaders in the field of HD. If you can't attend in June, the August event is sure to be just as exciting!

What about COVID-19?

The state associations hosting this event endorse the restrictions implemented by the Australian Government in relation to COVID-19. We ask that attendees abide by the restrictions set by your relevant State or Territory Government and ensure that you maintain appropriate social distancing measures while participating in this event.

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Eventbrite's fee is nonrefundable.

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